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Post by Koalapupu on Feb 4, 2005 5:23:04 GMT -5
Yay yay! I knew something was up when I didn't see a journal update from Sam for a while. Sam and Keving (and the rest of the fam): be sure to know that you had the biggest support team online cheering you all the way through! Have loads of happy family time with the new member  |
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raisangrrl
Little Diamond
~*It always rains the hardest on those that deserve the sun*~
Posts: 17
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Post by raisangrrl on Feb 5, 2005 10:57:28 GMT -5
I just wanted to thank you all for the warm wishes, and just everything.
Right now Kevin is in the NICU at Vassar Brithers here in New York. He kept turning blue, because he needed the oxygen, his sugar levels have risen and have been stable. RIght now he's being tube fed, and we're hoping te have him to the breast soon. He's been a little more lethargic than he should be, but he's in for a CAT scan right now, and hopefully, that will com eback fine. I think he's lethargic due to the pain meds I have in my system (he has nursed 3 times since he was born). I will call Mary with more updates, I just wanted to say thank you. We still have a wait ahead of us, so please keep us in your prayers and thoughts.
*hugs*
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Post by Aims on Feb 5, 2005 19:05:04 GMT -5
Awww Sam he's gorgeous!!  |
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Post by DaturaFae on Feb 5, 2005 21:40:33 GMT -5
We still have a wait ahead of us, so please keep us in your prayers and thoughts. Absolutely. |
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Post by redcloud on Feb 6, 2005 4:37:16 GMT -5
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Post by *Rachael Rox Sox* on Feb 6, 2005 5:54:58 GMT -5
I Sam and little Kevin! Congrats family! 
 : Monsters Inc
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Post by HappyPhantom on Feb 6, 2005 19:22:25 GMT -5
AWWW.... poor guy but I know he'll be home soon. I still have the package here for you and Kevin and plan on sendin it this week. I was sooooo happy to hear him when you called. There has been a lot of baby talk at work and I keep thinkin of you.  |
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Post by elizabeth on Feb 6, 2005 19:37:35 GMT -5
I, like Aimee, think he is gorgeous. Congratulations to Sam for all her hard work. |
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Post by :~:fishdust:~: on Feb 7, 2005 5:07:47 GMT -5
CONGRATULATIONS SAM AND FAMILY!!! the baby is darling! and my thoughts and prayers are w u.... |
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raisangrrl
Little Diamond
~*It always rains the hardest on those that deserve the sun*~
Posts: 17
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Post by raisangrrl on Feb 10, 2005 9:05:55 GMT -5
Thank you all for your prayers. We've been needing them. Hopefully today we will know more about what's going on with our little man. He seems to be doing better, and will suck at the breat, but he still really hates bottles. He's getting some formula, and some breastmilk. It's been hard to pump enough for him, so they supplement. Right now we're having problems with him wanting to latch. He'll latch after crying and screaming, so I'm hoping to get the Lactation Consultant up to help us. The more he can breastfeed, the sooner we can (hopefully) go home. I've talked to the genetisist and his tests will take up to 2 weeks to come back. He went for his MRI last night, and we should be talking to the nuerologist this afternoon. I'm healing fine. But my heart is aching from not having my baby here with me. I just want so much to take him home, and it hurts that I can't. We can't stay at the hospital here (which I did at the other hospital), but we're staying 5 minutes down the road at a Ronald McDonald House. You never realize how much these organizations do for people sometimes, and they're wonderful. The March od DImes gave us a NICU journal for Kevin so we could share this with him once he's older. They also gave us a few other books, the most important one being the one for how to help older children cope with what's been going on. My children and especially my husband have been awsome through this. The NICU nurses absolutely love my children, as do I. They've been great, especially at making mommy smile when she thinks she can't anymore. They've helped me through some serious depression in the beginning, and I'm thankful for that. I still get a little depressed, but seeing their faces makes it better. My husband, I can't say enough about him. I appreciate him more now than I ever have. He has literally been my rock. I really don't know what I would've done had he not been here, and I love him so much more now too. It's like I've fallen for him all over again. He is so wonderful and great, and I love him. Well, that's all for now. Mary will update for me when we find out what's going on (That's right I'll be calling sometime today! *hugs* |
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Post by Mary on Feb 10, 2005 10:56:15 GMT -5
Thank you all for your prayers. We've been needing them. Hopefully today we will know more about what's going on with our little man. He seems to be doing better, and will suck at the breat, but he still really hates bottles. He's getting some formula, and some breastmilk. It's been hard to pump enough for him, so they supplement. Right now we're having problems with him wanting to latch. He'll latch after crying and screaming, so I'm hoping to get the Lactation Consultant up to help us. The more he can breastfeed, the sooner we can (hopefully) go home. I've talked to the genetisist and his tests will take up to 2 weeks to come back. He went for his MRI last night, and we should be talking to the nuerologist this afternoon. I'm healing fine. But my heart is aching from not having my baby here with me. I just want so much to take him home, and it hurts that I can't. We can't stay at the hospital here (which I did at the other hospital), but we're staying 5 minutes down the road at a Ronald McDonald House. You never realize how much these organizations do for people sometimes, and they're wonderful. The March od DImes gave us a NICU journal for Kevin so we could share this with him once he's older. They also gave us a few other books, the most important one being the one for how to help older children cope with what's been going on. My children and especially my husband have been awsome through this. The NICU nurses absolutely love my children, as do I. They've been great, especially at making mommy smile when she thinks she can't anymore. They've helped me through some serious depression in the beginning, and I'm thankful for that. I still get a little depressed, but seeing their faces makes it better. My husband, I can't say enough about him. I appreciate him more now than I ever have. He has literally been my rock. I really don't know what I would've done had he not been here, and I love him so much more now too. It's like I've fallen for him all over again. He is so wonderful and great, and I love him. Well, that's all for now. Mary will update for me when we find out what's going on (That's right I'll be calling sometime today! *hugs* It totally made my day to read this. In fact, I purposely logged in so early just to see if you'd left a PM or post. *Whew* I'm glad Kevin is in such great hands at that hospital and I'm continuing to pray that he'll come home with you very soon. (So, is he able to swallow ok now?...) I can't even imagine how hard that must be leaving him there and having to go back and forth. You're so strong, Sam. Keep it up. You and your family are in my thoughts. Looking forward to talking to you later. [I'll be leaving tomorrow (Friday) afternoon for a weekend camping trip but I'll return Sunday night.] |
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Post by HappyPhantom on Feb 10, 2005 11:58:18 GMT -5
Yeah Good news for the most part! I'm glad things are goin better for you. I hope you can take the baby home soon. I can't even image what it is like being away from him like this, especially since he's a newborn. I'm glad you have people around you to support and take care of you. I'm also glad to hear that you and hubby are gettin along great and new sparks are flyin. ;D Hang in ther kiddo and soon the troubles will be a thing of the past. |
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raisangrrl
Little Diamond
~*It always rains the hardest on those that deserve the sun*~
Posts: 17
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Post by raisangrrl on Feb 10, 2005 21:22:12 GMT -5
I was going to call Mary,but I figure I am sitting here, I might as well post right?
We haven't gotten his results back. DO they think we like sitting here waiting? I want to scream and cry. I just want to know if there is anything wrong with my baby. I want to go home with him. I want to fall asleep with him next to me and I can't do this with him in the hospital with no fucking answers. I can't sit here wondering I can't do this. The wondering has me going absolutely crazy and I can't help but sit and cry. Is it do hard to understand that his family wants him home? DO they really understand how much this tears me apart? It feels like my heart is being torn in two. Every time I have to leave him, my guts wrench. I can't take this anymore. I'm tired of people telling me to be strong. I just want to fall to pieces, I want to cry and scream and hold my baby at home, in my house. I want to die every night he's not here... I want to feel helpless, and I just want him with me now...
*cries*
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Post by matzy on Feb 10, 2005 22:25:14 GMT -5
*hugs* |
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Post by lilyella on Feb 10, 2005 23:16:28 GMT -5
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Post by DaturaFae on Feb 10, 2005 23:47:16 GMT -5
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Post by redcloud on Feb 11, 2005 3:40:56 GMT -5
 :-*I hope he's coming home soon So young, and yet fighting for life. :-*He certainly is as strong as you are.
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Post by orfeo on Feb 11, 2005 5:32:05 GMT -5
OMG, somehow I missed this thread until now. First of all, welcome to the world Kevin. Say hi to your Mom for me.  Sam, it's so great to hear that he's finally here, but also tough to hear about what's been going on since he was born. I'll be thinking of you both lots and praying that it'll be all okay. I'm sure with such a lovely Mom he'll be fine. |
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raisangrrl
Little Diamond
~*It always rains the hardest on those that deserve the sun*~
Posts: 17
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Post by raisangrrl on Feb 12, 2005 11:27:13 GMT -5
GOOD NEWS! GOOD NEWS!!!!!!!
We have gotten most of his results back yesterday, and guess what?
EVERYTHING HAS COME BACK NORMAL (so far)!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Monday he's hopefully going for his muscle biopsy and his EMG (they want to see how long it takes his brain to respond to his muscle movements).
They told me I can breastfeed him as much as I would like to, and he might be able to try a bottle. I think I would rather him not, mostly because we;re all concerned about his swallowing relfex right now, and breastfeeding seems to be going smoothly and he's not choking when he's nursing. We're afraid that if he tries a bottle he'll choke or possibly asphixiate and thn end up with pneumonia, and we don't want that.
Of course, right now I'm a little p'd off because my hubby's mom was suppose to be here 2 hours ago, and she's not here yet. The past 2 days I couldn't get to the NICU til after 4 (yeah, let's say I wasn't too happy about that...) and it looks like today will end up being the same way. Pissed? Yeah, totally... *grumbles* Sometimes I wonder if anyone *REALLY* understands that I want him home, and right now to do that, he needs to be showing signs that he's getting enough food from me. Yeah, they're going to teach us how to insert the feeding tube and stuff, but I don't want him on it, I want him breastfeeding, and I can't be doing that if I'm sitting here! UGH!
*sigh*
Sorry, sometimes it just seems things are working against us, trying to stay positive. I had a really bad breakdown yesterday morning. I think I really needed it though. I've been trying to keep it together and it's hard.
I've met some really awsome people though, mothers from the house here that have babies or children in one of the ICUs. I hope they're babies or children get out ok, it's hard to listen to the stories of why they're here, and I'm sure they feel the same way. I'm just thankful there are places like this to help people. I never really knew how much the Ronald McDonald house chrities helped people, but now I do, and I'll never forget them. Same with the March of Dimes. I guess until you need them, you don't realize, which is unfortunate. You never prepare yourself for anything to go worng, and for these programs to be there, sometimes I wish I had, but you know, you never know, and even the best preperation can't prepare you for anything like the roller coaster some of these wonderful people have been on. I haven't been here that long, but even what we've gone through has been a roller coaster...
Anywho, rambling. I just wanted to thank you all. I love you all!!!
*hugs*
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Post by :~:fishdust:~: on Feb 12, 2005 11:38:03 GMT -5
Sam that is sooo wonderful!!!!!! i have to admit i got a bit scared when i saw that u just posted... coz ur previous posts got me awful worried.... and sad...... but im soooo relieved that it is wonderful news u had to share!!! as for the tiny hiccups now.... u just hang in there alright! everything will be aye-ok... My many prayers still with u.... in fact, im going to bed right now... and bedtime prayers will be dedicated to little kev n family....... love tons... BE STRONG! |
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Congrats again!! 
:-*I hope he's coming home soon 
